On behalf of The Endometriosis Foundation of America (EndoFound), I am thrilled to invite you to attend our Annual Patient Awareness Day on Sunday, March 10th, at Lenox Hill Hospital, New York City. This year, we continue with our second chapter of the Living Your Best Life with Endo series, focusing on Healthy Mind & Happy Pelvis. Endometriosis is a disease of the whole body and mind, afflicted with pain that stems from inflammation within the pelvis. Throughout the day, we will engage you in conversation and provide expert knowledge in fields ranging from nutrition & exercise to research & advocacy. This day has been created for and inspired by women reflecting their unique journeys and lifestyle. We invite you to share this day and bring your loved ones and support network. Come be a part of this dynamic series – we hope to see you there!
Tamer Seckin, MD, FACOG
Founder, Endometriosis Foundation of America (EndoFound)
Tomatoes, placebos, nocebos, & theories
What does flow have to do with endo
It’s not your mother’s period!
Living the anti-inflammatory life with healthy diet
Orilissa or not? EndoFound’s stance
Why was my endometriosis treated as IBS for 40 years?
Extreme endo warriors – stories of the not so “benign” disease
PUBLISHED: 12:54 EDT, 8 October 2018 | UPDATED: 14:32 EDT, 8 October 2018
The past few years have been difficult for Lena Dunham, as she’s battled endometriosis pain, undergone a hysterectomy, and suffered the heartbreak of ending a longterm relationship.
But the 32-year-old star told Hoda Kotb and Savannah Guthrie on the Today show this morning that being a writer has helped her pull through,
‘I think that were I not a writer, I would have no way to understand the complexity and the challenges and the darkness of the experience of being human,’ she said.
Starting off the week: Lena Dunham, 32, was on the Today show on Monday morning to talk to Hoda Kotb and Savannah Guthrie
Outlet: Lena talked about how being a writer has helped her through some of her darkest moments
Lena has been vocal about her battle with painful endometriosis.
At the age of 31, she made the decision to have a hysterectomy, writing for Vogue that the ‘unbearable’ pain had made her ‘delirious’.
Her ninth surgery to deal with her condition, this was perhaps the most traumatic, since it meant she would never be able to have children.
Lena has also spoken openly about her mental health issues, and was candid about her heartbreak after she and her boyfriend Jack Antanoff split after five years together.
‘I can’t lie and say that the last couple years have been easy. It’s been a time of… and some of that has been, you know, because of my own behavior. I’ve grown up, and I’ve developed in the spotlight, for better or worse,’ she said.
‘And I’ve also dealt with the challenge of my own body turning against me.
‘It’s been a time of tremendous loss and tremendous change, and I’ve always thought when people said, you know, with loss comes a lot of gain and a lot of power, I’ve always thought that was BS, but its turned out it’s true.
‘I’ve gained a great sense of community because I’ve been able to write about my experience and other women have reached back to me.’
She’s also found that simply being a woman in the US at this time is difficult, and writing helps her make sense of it.
‘In particular, being a human woman at this time in history and in this country [is hard],’ she said.
‘There’s so much to parse, there’s so many challenges with existing in a body… I’ve always grappled with my physical health, I’ve grappled with my mental health.
‘To have writing as a way to dig deeper to express myself and connect to other people, it truly is the reason that I exist,’ she said.
Lena received quite a bit of feedback for her Vogue piece about her hysterectomy in February.
Before taking the drastic step, she’d tried everything, including ‘pelvic-floor therapy, massage therapy, pain therapy, color therapy, acupuncture, yoga, and a brief yet horrifying foray into vaginal massage from a stranger.’
Changes: Shortly after her surgery earlier this year, she split with her boyfriend of five years, Jack Antanoff
After the surgery, she said, she felt an incredible sense of loss.
‘Because I had to work so hard to have my pain acknowledged, there was no time to feel fear or grief. To say goodbye,’ she wrote.
‘I made a choice that never was a choice for me, yet mourning feels like a luxury I don’t have. I weep, big stupid sobs, alone in the bathtub or in the area where, in a terribly cliché turn, I have started crafting.
‘Adoption is a thrilling truth I’ll pursue with all my might. But I wanted that stomach. I wanted to know what nine months of complete togetherness could feel like.’
Months later, she wrote another piece for Vogue, articulating the sense of loss she felt after she and Antanoff parted ways.
‘Our hearts were still broken from trying so hard to fix it but no longer uncertain about whether or not we could. The finality nearly killed me, and I remember muttering, “But what if we still went on dates?”’
In addition to writing articles, Lena frequently takes to Twitter and Instagram to express herself — which is where, so often, she hears from women going through similar troubles.
EndoSurvivors International Foundation (EIF) held an endometriosis conference in the third week of September 2018, in Lagos, Nigeria. EIF used the event to raise awareness about endometriosis and educate women, the public, as well as healthcare professionals.
Endometriosis is an abnormal growth of cells affecting an estimated 1 in 10 women and girls during their reproductive years. Victims of the condition are usually between the ages of 15-49 years and form approximately 176 million women in the world today.
Some facilitators of the went were Olivia Nwankudu — a Mandela Washington Fellow (MWF) and an endometriosis awareness campaigner, and Amaka Obi — a media personality turned radio host who is now founder of Wives Round Table.
Amanda Uzoma Obidike, regional lead and general administrator for YALI west Africa told TheAfricandream.net in a recent interview that though the cause of endometriosis is not known, there is a theory that its got something to do with tissues deposited where they are not supposed to be during the female menstrual cycle, some of which sometimes end up in the stomach area of the affected person.
“It affects the outside lining of a woman’s womb, harming the productivity and psyche of a woman, hence, leading to depression. Improved healthcare for women through early diagnosis could help a long way in the realization of a better menstrual hygiene,” Ms. Obidike said.
Reaction to endometriosis can be different for different patients, but typically known symptoms pointed out by resource persons at the conference included: headaches, nausea and or vomiting during one’s period, and diarrhea or constipation. Other symptoms are long and heavy periods, menstrual cramps, lower back, and upper leg pains, all of which can have serious consequences.
Dignitaries who spoke at the event included Mrs. Dorcas Shonibare; Director of Nursing Services in Lagos State Ministry of Health, who was joined by Dr. Adeniyi Adewunmi; Associate Professor and acting head — Department of Obstetrics and Gynecology, Lagos State University College of Medicine.
Majority of the speakers and resource persons encouraged women to speak among themselves and to professionals about their condition as “..early treatment and intervention leads to a better life.”
The event which held at the College of Medicine of Lagos State University at Ikeja in Lagos was sponsored by the Endometriosis Foundation of America and Lagos State Ministry of Health and Rave TV, Nigeria.
Almost 300 persons attended the event, they were made up of medical students across colleges in Nigerian states like Lagos, Oyo, Ogun, and the Osun States respectively. Other members of the audience were secondary school students, advocates for mental and physical health for women, and the media.
Visit www.endosurvivors.org and www.endofound.org to see what role you can play in the vital quest to bring endometriosis-awareness to communities in Nigeria and Africa.
The ribbon will be cut Saturday on a condominium community that’s a luxurious gem in a bucolic countryside setting.
Visitors are invited to an open house at noon on Saturday, September 15 for the third and final phase of The Gardens at Rhinebeck, a mix of single-level and two-story homes on Sunflower Place in Rhinebeck, less than two miles from the Rhinecliff train station.
One-third of Phase 3’s 79 units are already sold. Owners may choose between two models, the Arlington and the Beacon. Both carry the benefits of home ownership, with the bonus of a clubhouse with a pool, fitness center, and tennis courts, and minus the mundane chores of outdoor maintenance. The Arlington is a 2,134-sq ft, single-level condo with two bedrooms and two baths, plus a garage. The Beacon is a two-story condo that measures 2,731 sq ft, with a first-floor master suite, living room, and open-concept kitchen and dining area. The first floor also has a powder room and a garage. A second bedroom, den, and full bath are on the upper level.
“These are the final 49 units in the Gardens,” says David Silver, developer and partner of The Gardens at Rhinebeck with Joe Kirchhoff, builder and partner. “These are two spectacular luxury designs that will accommodate the need for space and open the door to the Hudson Valley, where you can be captivated by all there is around you!”
“The Town of Rhinebeck is so grateful to David Silver and Joe Kirchhoff for their continued vision for the Gardens at Rhinebeck,” says Elizabeth Spinzia, Supervisor, Town of Rhinebeck. “In 2010, they worked their magic on an abandoned building site and transformed it into the beautiful, high-quality Phase 2 of the Gardens. Now, with Phase 3 nearing completion, new units are available for residents and newcomers alike anyone looking to downsize and live in comfort and luxury. The Gardens at Rhinebeck fits in perfectly with the goals of the town’s Comprehensive Plan; preserving our open space, and maintaining our rural character, and proving Rhinebeck to be one of the country’s most extraordinary small towns.”
The Arlington models start at $539,000. Monthly maintenance — which includes landscaping, snow removal, garbage pickup, clubhouse, fitness center, pool, and tennis courts — is $308. Annual taxes are $5,249. Owners of the Beacon models can expect to pay at least $573,395, with the same monthly maintenance fee as the Arlington. Annual taxes are $6,402.
Sharon, CT (April 13, 2018) – Women’s Support Services of the Northwest Corner (WSS) is hosting its 18th Annual Trade Secrets® on Saturday and Sunday, May 19 and 20, 2018. Each year thousands of garden lovers trek to the Litchfield Hills of Connecticut for what has been dubbed “the northeast’s garden event of the year!”
Trade Secrets®, founded by Honorary Chair Bunny Williams, kicks-off with Saturday’s rare plant and garden antiques sale featuring nearly 60-vendors – specialized growers, small nursery owners, antiques dealers, and artisans. They gather together to sell unusual plants, garden antiques, and other unique outdoor objects.
On Sunday, spend the day taking a self-guided tour of three of the most beautiful and picturesque private gardens.
The Falls Village, CT, garden of Bunny Williams and husband John Rosselli, has been on every Trade Secrets® tour and is a highlight for garden lovers who come back year-after-year to see it. An added treat: you will most likely have the pleasure of meeting Bunny & John as they enjoy their garden to the fullest and are often out and about during the tour.
In 1998, Henry Hope Reed commented about the Wethersfield Estate in Amenia, NY: “The inspiration is grand, the tradition noble, and the vision all-seeing; yet, with all, no detail has been neglected. . . Wethersfield Garden is the offspring of the wise, patient, and loving solicitude of a master.” These words by the noted architecture historian describe both the grandeur and simplicity that is Wethersfield. Described as “the finest classical garden in the United States built in the second half of the twentieth century,” it is the creative child of Bryan Lynch, Evelyn Poehler, and Chauncey Stillman.
The garden at Gil Schafer’s house also in Amenia, NY, aptly named Middlefield for its siting in the midst of an old farm field, was a personal project for Schafer—and one of his early collaborations with long-time friend and landscape designer Deborah Nevins. The nearly 45-acre property is composed mostly of wooded hillside, but at its base, nestled in a hollow of land overlooking a stream, sits a 6-acre field which forms the setting for the house and its surrounding garden. While the design of the house is inspired by the 1840’s Greek Revival architecture commonly found in vernacular farmhouses in the region, the design of the garden is an exploration of both traditional and contemporary design ideas.
Tickets for Saturday’s sale are $125 for early buyer from 8-10 am with a continental breakfast. $50 for regular buyer from 10am-3pm. These tickets can be purchased in advance or day-of at the event. Late Bloomer tickets are $25 from 1-3pm and can ONLY be purchased the day-of.
Garden Tour tickets are $75 and available in advance only. There is parking at both William’s garden and Wethersfield. To visit Middlefield, parking and shuttling will be provided from Wethersfield.
Trade Secrets® is introducing Print-at-Home Etickets this year to purchase your advance tickets. To purchase tickets, make a tax-deductible donation to WSS, or to get more information on the event please go online to tradesecretsct.com or call 860-364-1080.
Our 9th Annual Blossom Ball is bound to be a feast for the senses. The glamorous Cipriani 42nd Street will be in full bloom for the black-tie affair. Our honorable guests from the medical, research, charity and entertainment worlds will mix and mingle as we recognize our two honorees, singer Halsey and endometriosis activist and researcher Lone Hummelshøj. The Blossom Ball will be informative, educational and fun—a cocktail hour will be followed by a multi-course sit-down dinner with a lively afterparty to follow. We look forward to seeing you there!
Blossom Ball 2018 Program
Subrata De & Sandra Gelbard, MD.
Mehmet Oz, MD
Tamer Seckin, MD
2018 BLOSSOM AWARD
GRAMMY Award-nominated, multi-platinum alternative pop maverick Halsey has been hailed by Billboard Magazine, Forbes, and MTV as “the voice of her generation.” But just a few years ago Halsey was still Ashley Nicolette Frangipane, a New Jersey teen who’d escaped her chaotic family life for New York, writing poetry, and scrounging money for concerts and her next slice of pizza.
In 2014 she recorded a song called “Ghost” about her junkie ex-boyfriend and put it on SoundCloud. It blew up online and record labels came calling—overnight. It wasn’t long before she signed to Astralwerks and began opening on major tours for the likes of The Weeknd.
After her EP, Room 93, Halsey released her first full-length album, Badlands, which debuted at number two on the Billboard charts in August 2015. The album went platinum and scored more than two billion streams, and Halsey was the most tweeted artist at both SXSW and Coachella.
She has since sold out performances at venues on five continents, including Madison Square Garden. She won the 2016 Breakthrough Artist Award at Music Biz, spoke up for disenfranchised teens at the United Nations, and trended worldwide on Twitter 14 times. She performed at the American Music Awards, with Bono on Jimmy Kimmel Live to benefit the (RED) Foundation, and with Justin Bieber on The Today Show.
Halsey closed out 2016 with an emotional performance at the Nobel Peace Prize Concert. Accompanied by an orchestra, she made a statement with her jacket emblazoned with “20:1”—representing the ratio of male-to-female Nobel Prize recipients. She began 2017 on the cover of Forbes magazine’s 30 Under 30 issue alongside Michael Phelps.
Now 23, Halsey talks openly about mental illness, race, queerness, and sexuality. She has also been incredibly open about her own battle with endometriosis, paving the way for so many women to understand their own experience with this chronic pain. Her inspiring message following surgery was a bright light for us all:
“IF YOU SUFFER FROM CHRONIC PAIN OR A DEBILITATING DISEASE PLEASE KNOW THAT I HAVE FOUND TIME TO LIVE A CRAZY, WILD, REWARDING LIFE AND BALANCE MY TREATMENT AND I HOPE SO MUCH IN MY HEART THAT YOU CAN TOO”.
She has raised money and awareness for LGBT ally organizations; for My Friend’s Place, an L.A.- based homeless youth organization; and for GLSEN, an organization that helps LGBT kids in school. In January 2017 Halsey participated in the Women’s March in D.C. and donated $100,000 to Planned Parenthood, thanks to her Twitter fans. These are just a few of the reasons why she’s as much of a badass offstage as on.
2018 HARRY REICH AWARD
Lone Hummelshoj is well known as an advocate in the field of endometriosis, in particular for her work in getting the disease recognised at policy level. She originally made history in 2002 when she was instrumental in the implementation of the first (and only) national legislation, which provides referral guidelines to centralised specialist centres for the treatment of endometriosis in Denmark recognising the need for highly skilled expertise in the management of the endometriosis. She made history again when, in 2006, endometriosis was added to the working agenda of the European Commission, which consequently funded an endometriosis project through its Public Health Programme in May 2007. Lone addressed 100 female state legislators in Washington DC in 2011, highlighting the personal and societal burden of endometriosis, and is presently a member of the Women’s Health All Party Parliamentary Working Group in the UK.
Lone Hummelshoj has been the Chief Executive of the World Endometriosis Society (WES) since September 2005, and the Chief Executive of the World Endometriosis Research Foundation (WERF) since co-founding WERF in July 2006.
On behalf of WES Lone project managed the first global effort to reach consensus on the management of endometriosis, as well as four subsequent consensuses on: classification, diagnosis, patient centred outcomes, and centres/networks of expertise and specialist care. These initiatives now involve 38 national and international stakeholder organisations across the world. She also project managed four international workshops agreeing to research priorities in endometriosis, has overseen four successful World Congresses on Endometriosis, and is working with the ESGE and ESHRE to provide practical guidelines on the surgical management of endometriosis.
On behalf of WERF Lone has raised more than a million euros to conduct multiple ground breaking studies to prospectively establish the significant burden of endometriosis on women’s lives in order to justify legislative funding for basic research into disease mechanisms and targeted treatments. She coordinated the global effort to develop standardised patient and surgical data collection tools and harmonisation of SOPs in the collection of biospecimens to enable large-scale, cross-centre, epidemiologically robust research into the causes of endometriosis, novel diagnostic methods, and better treatments. The resulting WERF EPHect tools presently are being translated into ten additional languages under her supervision and are currently adhered to in 18 collaborating institutions contributing for the first time to large, comparable, data-sets in endometriosis research (and validation thereof).
Lone co-founded the Danish Endometriosis Society in 1997, chaired it for seven years, where she oversaw two innovative national awareness campaigns and secured close collaboration between “physicians” and “patients” – in addition to securing the above-mentioned legislation for national referral centres for specialist care.
Since 2005, Lone has published endometriosis.org, the largest online global forum for evidence-based facts on endometriosis. Endometriosis.org has ~2,500 daily visitors, and 15.5K followers on Twitter.
LONE HAS PRESENTED ACROSS THE GLOBE ON THE IMPACT AND BURDEN OF ENDOMETRIOSIS, IS REGULARLY UTILISED AS A SESSION/MEETING ORGANISER AND CHAIR, AND HAS AN IMPRESSIVE LIST OF PUBLICATIONS FOR A LAYPERSON. SHE IS ACTIVE IN THE AAGL, ESHRE, AND ASRM SPECIAL INTEREST GROUPS ON ENDOMETRIOSIS; A MEMBER OF THE ROYAL SOCIETY OF MEDICINE; AN AD HOC PEER REVIEWER FOR FIVE SCIENTIFIC JOURNALS; AND IS ON THE FACULTY OF F1000 MEDICINE FOR WOMEN’S HEALTH.
Lone Hummelshoj has a background in sales and marketing (13 years with IBM – managing large clients within the financial services sector in Europe), and has worked as a freelance business development consultant since 1996, specialising in strategic marketing, project management, and facilitation.
2018 BLOSSOM BALL EMCEE
Mara Schiavocampo is a three-time Emmy Award-winning news correspondent, best-selling author, and podcast host based in New York.
A celebrated journalist, Mara has covered nearly every major news story of the last decade, most recently as a correspondent for ABC News’ Good Morning America. She has received numerous accolades and awards, including Emmy Awards for Outstanding Morning News Program (Good Morning America, 2016), the Boston bombing manhunt (NBC News, 2013), and the 2008 Presidential election (NBC News). In 2007, she became the first broadcast journalist ever honored with the National Association of Black Journalists’ prestigious Emerging Journalist of the Year Award. Over the years she has also won an astounding seven Telly Awards and a NY State Broadcasters Association Award for Outstanding Hard News.
Prior to joining ABC News in February 2014, Mara was a correspondent for NBC News as well as the anchor of “Early Today” on the NBC network and “First Look” on MSNBC. Mara has also worked as an international contributor and commentator for numerous news outlets and websites, including The Oprah Winfrey Show, Current TV, Yahoo!, NPR, Ebony magazine, UPTOWN magazine and more.
Resistance Revival Chorus
Fresh off their inspiring performance with Kesha at the Grammy Awards and a recent collaboration with Philip Glass and Carly Simon at Carnegie Hall, the Resistance Revival Chorus only grows louder since their first public appearance as a flash mob in Times Square in July 2017. The Resistance Revival Chorus is a collective of more than 60 women who join together to breathe joy and song into the resistance, and to uplift and center women’s voices. The great artist and activist Harry Belafonte once said, “when the movement is strong, the music is strong.” In that spirit, the Resistance Revival Chorus hosts a series of regular musical events, Resistance Revival Nights, where the community gathers to rejuvenate our spirits and honor the protest songs that have historically been central to civil rights movements. We believe that art and culture are essential to changing hearts, minds, and history; and we commit to the principle that joy is in itself an act of resistance.
Ginny Suss is the former tour manager for The Roots and one of the organizers and producers of the Women’s March in Washington, DC. She helped co-found the Resistance Revival Chorus and until recently was the VP of Okayplayer, the original progressive urban music site and the premier digital destination for music connoisseurs worldwide. She also co-founded OkayAfrica. As a video producer, Ginny oversaw Okayplayer + OkayAfrica’s original video content, and created and produced many original series, including the animated Storyville now up on TBS.com, Okay Acoustic, Player Xchange, The Roots Of series, in addition to creative agency and brand video work. With expertise in event production, Ginny has helped to produce annual events such as The Roots Picnic, the Okayplayer Holiday Jams featuring The Roots, in addition to Okayplayer’s SXSW events, annual partnerships with Summerstage, Lincoln Center Out Of Doors, OkayAfrica’s launch at Celebrate Brooklyn in Prospect Park and more. She’s also known for her photography, particularly focused on live musicians and musical events.
Paola Mendoza is a film director, activist and author. She was a national organizer and the Artistic Director for the Women’s March on Washington, the largest protest in recorded history.
For her day job, Paola is a critically acclaimed film director. Her films have continually tackled the effects of poverty and immigration on women and children in the United States. Her award-winning movies have premiered at the most prestigious film festivals around the world. She was named one of Filmmaker Magazine 25 New Faces of Independent Film and she is a Tribeca All Access, Film Independent and Independent Film Week fellow. She is a co-founder of The Soze Agency and has been the creative director for campaigns fighting for immigration reform, criminal justice reform, incarcerated mother’s and women’s rights.
She is a co-founder and member of the critically acclaimed, Resistance Revival Chorus. Most recently she co-authored the New York Times best seller, Together We Rise.
Moist Paula, so named for her legendary turn of the century instrumental rock trio Moisturizer, is an Australian saxophonist and composer who has been based in NYC since the mid 90s. Known mostly for her work on bari sax, she has toured internationally with Melvin Van Peebles, Nick Waterhouse, Burnt Sugar Arkestra and C.W. Stoneking. At home in NYC she has maintained a weekly gig since 1997 with Reverend Vince Anderson and his Love Choir, fronted her own projects Moisturizer and Secretary and recorded and performed live and on TV with dozens of artists in many styles, including The Roots, Irma Thomas, HAIM, TV on the Radio, Gogol Bordello,Smokey Robinson and Binky Griptite of The DapKings, all the while composing and recording original ambient electronica on EWI (Electronic Wind Instrument). Moist Paula’s Bliss Station is an elegant jazzy combo led by Moist Paula on baritone sax, and comprising long time members of her extended musical family, which performs standards from the American Songbook, instrumental covers of contemporary popular music and Moist Paula’s original compositions.